Tuesday 23 August 2022

Life Lessons after Warren’s death.

 


Life lessons learnt after Warren’s death - I already knew this one as I was taught it decades ago. What a privilege growing older is, when not everyone has the chance to. You realise how important it is not to take anything for granted and tomorrow isn’t promised however old you are. Expect the unexpected and live each day as it comes.

Realising the resilience of the human race. Still, now, I think: ‘How did I get through that  day?’ Being in the hospital after Warren’s first cardiac arrest, telling his family and friends he was critically ill and then dead plus normal day to day functioning that’s needed as a parent. Even on days like that your heart keeps beating, your lungs keep breathing and you carry on. 

That it’s ok to talk about grief and death using whatever vocabulary is right for you. I choose not to use lost or passed when talking about death, I feel those terms can be confusing so I just use dead and death. It maybe harsh for others to hear but it’s how I wish to express myself. I also get no comfort from seeing white feathers, dragon flies and robins, I don’t want to be watched over and I find angels wings scary. However I like seeing robins as they remind me of visiting National Trust gardens. If something gives you comfort it’s right for you and I’d never mock someone’s beliefs for seeing something as a sign from their loved one. In return I think it’s ok to say it’s not for me.

Warren’s death made me reevaluate who I want to spend time with, some people walked out of my life, some faded away from me and others stepped up and became so important that I couldn’t imagine a time without their friendship. Then there are the treasures who’ve been there for all my tough times and have never faltered in being all I need them to be. I’ve also learnt I’m very happy to be single and not to be curious about dating apps like Tinder ever again ! 

I’ve learnt it’s ok to happy and to make plans. The pandemic put everything on hold, so I had plenty of time to sit quietly with my thoughts and memories of Warren. Now we think of him and his antics every now and then and there  are little reminders of his presence in the house . It’s not sad as most things Warren got up to made you laugh and shake your head ! When I was with Warren we spent so much time in the country at hotels or visiting National Trust Properties now I’m back where my heart is happy visiting cities. I love being in London so much and Warren hated it! I’ve already got three more trips there planned for this year. I do think he’d have loved one of my new favourite places though Kew Gardens. I do cherish the adventures we had exploring new places and I’m grateful for the time we had, it’ll always be an important chapter. Another life event where I adapted and evolved as a person.

Since Warren’s death I feel more of a sense of urgency to do things I’ve wanted to do for years. The don’t dream it plan it mantra is a favourite at the moment. Next month I’ll complete my 50 things for my 50th list, I almost gave up on it after Warren’s death . In the end I adapted a couple of things and chose a couple of new ones. I think he’d be shocked that I’ve had so many things done to my house this year, I was brave ! I’ve started a new list Live Life Happy so I look forward to more adventures and making memories.

I’ll be honest what I find hard is once someone dies they are remembered for their good qualities, other parts seem to be erased. However in life people negotiate the ups and downs of relationships daily. It seems wrong to say anything negative about someone who is dead and they become a saint. Again I’d rather people were honest, no one is perfect and the imperfections add to the character. To me it keeps Warren more true to the person he was when alive. Yes Warren was a good man, caring, generous with his time, helpful, loving  but he was also a great one for sulking , being grumpy and a liability……..I learnt tolerance and realised we both needed our own space especially when sleep was involved, he was a snoring night owl, I was an insomniac lark at the time ! Plus I’m practically tee total and Warren was at the other end of the spectrum. 

I like Lois Tonkin’s 1996 Dr. Lois Tonkin, in her 1996 article Growing Around Grief: another way of looking at grief and recovery well worth a read. Basically the grief doesn’t shrink you slowly build life around it . I started off with keeping Mondays special every week as they were often a day Warren and I spent together , then we had a pandemic so that stopped for a while. Then as soon as I was able I made a lot of plans and I feel my life has expanded and I am spending more time with those whose company I enjoy, including my own company ! 


I sometimes wonder am I grieving as I should? I do also wonder if grieving during a pandemic when you’re focused on keeping those you love alive makes grieving different. Also we were initially all isolated from each other so it was easy to believe Warren was away at work or at his own house. It’s three years and I just remember the happy times Warren and I had , we had plenty of adventures, turns out for Warren it was a lifetimes worth . I don’t feel sad or upset for myself and I don’t cry. It’s just wrong when someone young dies, he was two years younger than me and age wise I’ve had five extra years of life than him. Any anger I have is over the fact he didn’t have more time to enjoy, he’d recently got a job he loved as our local community PCSO, he’d moved into a new house share and got himself a better car. Then he died. I do think things could have been different if he’d received more investigation into an episode of chest pain in November 2018 and had the correct follow up but I’ll never know. 

            Although I say I only remember the happy times, I’m lying in that I also remember vividly the day Warren died and the days after with his funeral in Ireland being horrific . Those days are currently playing in my head this morning, like a film at the back of my eyes. That’s traumatic events for you, they seem to have the ability to not fade very much and whole conversations are remembered. I also think the conversations where people have said completely the wrong thing also leave a deeper imprint. It took a year to find my peace from the aftermath of Warren’s death and how I was treated by certain people. Letting go is hard.


If you’re still here after reading all of that , thank you and well done. I hope to spend today reflecting on the five years worth of days spent with Warren that lead up to this horrible day in 2019. Celebrating his life and not his death, remembering him emerging from the bushes on our last holiday in Turkey as he’d fallen over extremely drunk by 10am ! That was Warren ðŸ’™

Friday 10 June 2022

Twenty Gifted Years ♥️

 Twenty Years ♥️

Twenty years, impossible to imagine dreamed of years , yearned for, cried over , terrifying years, normal times, sad times but always a life that was lived. Twenty years, twenty gifted years, the life line thrown to Eloise when Zara couldn’t live here any longer. Hope, organ donation gave me that. Organ donation helped Rebecca cope with the devastating loss of her precious daughter Zara. It has helped her over the years knowing Zara’s heart beats on. 

Organ donation, never a cure but when you’re faced with death and offered a second chance at life you grasp it firmly and go with it. Life isn’t the same, for some part it’s better as every day has more meaning than it did before, time becomes precious. Dreams aren’t for chasing they’re for planning. Yet a level of anxiety is always there, heightened alert and fear for the future, you lose your naivety. 

            Some of you have been here right from the start of Eloise’s transplant story. You looked after her and me in Bristol Childrens Hospital in PICU when my whole world was broken or the Freeman. Mandy I’ve never forgotten seeing your lovely smiley face when we returned from Great Ormond Street and Eloise was admitted to BCH with rejection. So many people couldn’t face me , unsure what to say but you came in and got Eloise to have her ecg without being upset. You and Stella remained our favourite cardiac techs , a highlight of outpatient appointments. 


              Friendships old and friendships new , you can’t do transplantation without the right army with you, it’s gruelling mentally . A real roller coaster I can happily handle but the post transplant roller coaster is a trickier beast and it’s best we all scream together. We laugh, we cry and hopefully get another day to laugh some more. Recently some transplant legends have died and I bloody miss them, my inspiration and my hope and my support. Eloise is probably one of those legends to the families of young transplanted children, she’s their hope. Thank you friends, thank you colleagues , thank you NHS, thank you to those who set up the organ donor register, thank you organ donors, thank you Zara and thank you Eloise for being a complete and utter star ⭐️ Twenty extra years with you ♥️ From 21 months to 21 years. Through every stage of the education system and beyond, your story continues………..




Monday 23 May 2022

Just Another Day 23rd May 2022

 


7.15am -23rd May 2022 is here and I feel nothing other than anticipatory nerves as Eloise has a heart transplant clinic appointment this morning at Papworth. When Eloise received the appointment for this date last month my heart pounded and I felt sick. Of all the dates, it was this one the 23rd May, a date that’s so vividly remembered 20 years on. A day that became one of the worse days of my life. Eloise offered to get it changed and I did give it some thought. However I have Mondays off work and as the appointment is at 8.25 we had to come here yesterday. We’ve also missed being with Amelia on her 19th birthday but I don’t think she needs me cramping her style. Time is a great healer they say and perhaps it is. The scars of what went before remain with me, but I’m processing things differently. I’ve chosen to not think about 23rd May 2002 and I now have control. Today is just another day. 

           11am- today is a good day, Eloise has had her appointment, good ecg, chest X-ray and blood results ( how speedy was that !) She’s doing really well, no concerns and will have a CT angiogram at her next appointment. To be fair as she was only seen at the Bristol Heart Institute last Monday I went into this appointment as relaxed as I could be. Always getting Eloise to look for high spikes (voltages) on her ecg as low spikes are an indication of rejection. I no longer go into Eloise’s appointments , I’m just here as her travel companion. I don’t think anything will change how I feel today. Living in the moment is the best way, I think the past will stay shut in its protective box in my head today. If it does creeps out it’ll just be in the shadows tonight. 


12.38- More thoughts, I think the turn around started 3 or 4 years ago, each year the build up got less and less until this year, absolutely nothing. Warren’s unexpected death followed by a two year pandemic has just confirmed that I’m totally right to live in the moment and see the joy in every day. Some days it is a struggle to stay positive but I usually manage it. I’ve had a few (now resolved )health issues over the past year and I’ve questioned my own mortality. Even during those days I still made plans and doing things I enjoy with those I love really helped. I like to live not to just exist, making memories and taking a lot of photographs is so important to me. Plus my ever increasing Jellycat Crew.Just do what ever makes you happy. Time is not something we will always 

    have, so if you want to do something do it now. Don’t dream it, plan it.